I Have NF but NF Doesn't Have Me

A disorder that's rare, diagnosed at age six.

Causes fear to my family, oh God's little tricks.

Brain tumors and pain, with surgeries to come.

Eleven was my first, I have scars that are from.

Tumors can grow and cause much dismay.

Not to mention hospital bills, expensive to pay.

Feeling alone, not aware of a soul,

Who has this too, a friendship goal.

Ashamed and hidden, no one will know,

Of the pain and fear, I daily undergo.

Growth and acceptance, came as I aged,

Seeing others worse off, tumors enraged.

I met a few friends, the same diagnosis too.

So close to my home, crazy, I never knew.

Surgeries, MRI's and medical tests galore,

Seem much easier. when you've got supporters in store.

I now stand up proud. Judgment? Could care less. 

Cause I love me, I don't need to impress.

Adversity and difference used to haunt my thoughts and mind.

But now I proudly shout, "I'm one of a kind".

Neurofibromatosis was once my big fear.

And now I am proud of my diagnosis. It's the reason I'm here. 

This poem is about: 


Additional Resources

Get AI Feedback on your poem

Interested in feedback on your poem? Try our AI Feedback tool.


If You Need Support

If you ever need help or support, we trust CrisisTextline.org for people dealing with depression. Text HOME to 741741