Rare llness
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Being diagnosed was tough
Being unknown was worse.
From here it can only get better,
with the right tools and a little good luck.
Optimism will be my guide.
This will be with me
forever
the first thing you should know is that I know you didn't plan for your life to be this way.
you were not a child who dreamt of life trapped in the four mint colored walls of a hospital room.
Struggle
It’s the only thing I’ve known
For as long as I can remember
The older I get the more control I gain
This is my body
